Ever have one of those days? One of those weeks? Months? Years? You simply do not know where you are going to get the strength to take one more step forward! The questions, answers, and everything else is so overwhelming, suffocating in fact, and there seems to be no end in sight . . . Yea, I know what you mean . . . I’ve been there and still visit there once in a while . . . but, it simply takes a little bit extra!
Through the years, facing hours, weeks, and months in hospitals, with therapists, sitting through IEP meetings, and the list goes on, there have been many moments where I wasn’t sure which end was up let alone what the outcomes were going to be!
I look back now, and in those moments in life where I have one of those days, weeks, months, and even years, and I remember I cannot control the outcomes of all things. I can only do what I can do and, with a little extra, I manage to take one more step forward, I manage to make one more phone call to Social Security to, yet again, advocate for my son’s well-being, to research one more therapist’s ideas about occupational therapy, physical therapy, and speech therapy to ensure no stone is left unturned, look into adult educational practices as my adult son continues to learn about the world around him, and search for all transitional options in relation to work, volunteering, and so on . . . All it takes is a little extra . . . after all, the difference between my son’s ordinary is a little extra chromosome and for that, my little extra is motivated to continue forward even on those days where I wonder what all it takes . . .